HOW SHOULD A BODY BE?
HOW SHOULD A BODY BE? is a coming of age story, a family story and a love story set against the backdrop of a girl learning to live with a degenerative neurological disease called Charcot-Marie-Tooth. It isn’t all puppies and rainbows, but it isn’t surgical disasters and torpedo either. Instead, this book is about learning to live with exactly what we are given - no more, no less.
A touching, funny, lively look at what it means to make a life when there are no guarantees; how an open mind leads to the best experiences; and how traveling to the farthest reaches of the world can bring us home.