How Should a Body Be?

When she is twelve years old, Bethany discovers the reason her grandmother wears leg braces—and it has something to do with how Bethany herself has started tripping, falling, and losing her grasp on objects. The cause? Charcot-Marie-Tooth, an inherited genetic disorder (or is it a disease?). How does it feel? Like a torpedo that has wrecked her once idyllic childhood. And yet, CMT isn’t everything; Bethany grows up, goes to college, falls in love, and learns that the person she has become is, at her heart, the person she always was—just with braces. HOW SHOULD A BODY BE? is a coming of age story, a family story, and above all a love story that happens to be set against the backdrop of its titular question. 

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